Hospice UK responds to new report highlighting inadequate end of life care for people with dementia

Dec 01, 2014

Responding to the publication of a new joint report by Marie Curie and the Alzheimer's Society published today - Living and Dying with Dementia - Barriers to Care - which outlines the barriers faced by people with dementia in England accessing high quality end of life care, Jonathan Ellis, Director of Policy and advocacy at the charity Hospice UK, said:

“There is an urgent need to improve care for people with dementia facing the end of life and it is shocking that they face so many barriers to getting the support they need.

"Hospices are very aware of this challenge and are increasingly providing care for people with dementia, with many taking on specialist staff to meet their needs. Outreach support to care homes and shared day services are some of the many initiatives already in place. Hospices are running joint education programmes for colleagues in dementia services to increase confidence with advance care planning and support in the final months of life.

“Most hospice care is provided in the home, so hospices are well placed to support care for people with dementia in a familiar setting and which also includes vital support for their families. Many hospices are working with their local hospitals to reduce inappropriate admissions at the end of life, including those people with dementia, and provide alternative care options. Earlier this year Hospice UK launched a programme to expand this work across the country.

“We welcome this report’s recommendations, particularly the need for a wide range of organisations with expertise in dementia and end of life care to work together to tackle this issue and ensure that more people with dementia have access to high quality end of life care and are treated with dignity.”

Notes to Editor

  • Hospice UK is the national charity for hospice care and the only membership body for organisations providing hospice care. We support and champion the work of more than 200 of these organisations across the UK.
  • Hospices, and other organisations which provide hospice care, offer vital care for people with terminal or life-limiting conditions and also support their families and carers.
  • For further information follow us on Twitter @hospiceukPA.
  • Get all the latest news from the hospice and palliative care sector, as well as patient stories, on ehospice UK at: www.ehospice.com/uk This service is managed by Hospice UK. You can also follow ehospice news on Twitter at @ehospicenews.

Media enquiries

Please contact Suzanne Stevenson in the press team on 020 7520 8296 or by email at s.stevenson@hospiceuk.org. For out of hours media enquiries please call 07881 940 318.

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