Hospice UK responds to report into dementia at the end of life

Sep 30, 2016

New research from the Dementia Intelligence Network (DIN) and National End of Life Care Intelligence Network (NEoLCIN) has found that the proportion of people in the UK dying with a recorded dementia diagnosis has more than doubled since 2001.

The new report, Dying with Dementia, also found that only one per cent of deaths with dementia occur in a hospice, compared with five per cent of deaths in the general population of people over 65.

Commenting on the findings, Jonathan Ellis, Director of Policy and Advocacy at Hospice UK, said:

“Understanding where and how we die is vital to understanding how we can improve end of life care in the UK. The findings from the Dementia Intelligence Network and National End of Life Care Intelligence Network, clearly show that there is much to be done to make sure services are accessible to people with dementia, and recognise their needs and preferences.

“Hospices are already working with care homes, the NHS and other providers to share expertise and get the right care to people where they feel most comfortable. Since 2015, Hospice UK and Dementia UK have also been facilitating a dementia end of life care ‘Community of Practice’. This brings together people from the hospice sector and other settings, keen to build their skills and provide high quality palliative and end of life care for people and their families affected by dementia.

“We need to work much harder as a society to improve the access to person-centred palliative care for everyone, regardless of medical condition, geography and personal circumstance. Hospices are already reaching out to play their part in making this a reality.”

The data analysis report and briefing are available to download from the National Mental Health, Dementia and Neurology Intelligence Network (NMHDNIN) website, along with datasets for each local authority and clinical commissioning group.

Notes to editor

  • Hospice UK is the national charity for hospice care and the only membership body for organisations providing hospice care. We support and champion the work of more than 200 of these organisations across the UK.
  • Hospices, and other organisations which provide hospice care, offer vital care for people with terminal or life-limiting conditions and also support their families and carers.
  • For further information about hospice care follow us on Twitter @hospiceukPA.
  • Get all the latest news from the hospice and palliative care sector, as well as patient stories, on ehospice UK at: www.ehospice.com/uk This service is managed by Hospice UK. You can also follow ehospice news on Twitter at @ehospicenews.

Media enquiries

Please contact Stephen Clark, Senior Media and PR Officer at Hospice UK, on 020 7520 8224 or by email. For out of hours media enquiries please call 07881 940 318.



What does hospice care mean to you?