Carers play a critical role in caring for someone towards the end of life so they can be supported to live well and to die at home if this is their wish.
For the carers themselves, this can be very demanding indeed. Many have to take a break from work or even give up working entirely. Yet many employers do not recognise their needs, for example for greater flexibility or more support. We also know that informal networks and the wider community play a vital support role.
Too often, however, the health and social care sector is ill-equipped to support such networks and to adapt to situations where traditional family structures are not in place. This must change. Hospice care cannot be delivered without well-supported carers and resilient communities.