National Transition Community of Practice

National Transition Community of Practice

Find information about the National Transition Community of Practice, a learning community for professionals who support young people with complex, life-limiting conditions to enable a positive transition and transfer of care from children’s to adult services. 

What's on this page

Join our Community of Practice

The number of children and young people with life-limiting conditions is increasing, and a growing number are living into adulthood [1]. These young people and their families experience a range of challenges and barriers around transitioning into adult services. 

The National Transition Community of Practice brings palliative care professionals from across the UK together. It is a supportive environment to share work, build skills, improve knowledge and develop confidence around transition from children’s to adult services.  

This helps us transform care for young people with complex and life-limiting conditions. It also helps us extend our reach and influence other care providers and stakeholders. 

Hospice UK and Together for Short Lives work together to chair and facilitate the National Transition Community of Practice, with quarterly online meetings. 

Register to join us in our supportive learning community, which will help you feel informed and motivated. 

Community of Practice Framework

Find further information about the Community of Practice Framework in this handy PDF.

Hospice UK and Together for Short Lives are working together to provide up-to-date information about Transition via a quarterly newsletter.

Online discussion group

Hospice UK and Together for Short Lives are working together to provide up-to-date information about Transition. Information on events, latest articles, best practice, research and other useful resources will be included in quarterly meetings. 

When you sign up to join the network, you will be invited to join our Microsoft Teams online discussion group, where you will be able to share information and chat to fellow members of the group. You will be given instructions on joining the group once you've completed the registration form.

Sign up to the Network

Benefits of joining

Feedback from participants has included:

"I am finding the meetings really helpful. It feels good to know how many people there are out there who have so much experience". 

"I think these meetings are so important; without them I think knowledge and information would get lost. There are so many people doing incredible work in the world of Transition but it is only through meetings like this do we get to hear about them. I really appreciate being part of them".  

"Really good opportunity to network and find out more about the great work that is going on out there". 

"Updates from different people around the country and in different organisations, networking and opportunities for future work/linking in with others". 

 

Illustration courtesy of Studio Beci 

Project ECHO Transition Hubs

The following organisations have developed Transition ECHO Networks. These aim to have a far-reaching impact on care and support, reduce health inequality and improve service provision. 

Yorkshire and Humber Children’s Palliative Care Network

Yorkshire and Humber Children’s Palliative Care Network

Find out more about Yorkshire and Humber Children’s Palliative Care Network
Find out more
Keech Hospice Care ECHO

Keech Hospice Care

Contact the Keech Hospice Care ECHO
Find out more
the Solent NHS ECHO

Solent NHS

Contact the Solent NHS ECHO
Find out more
Prince and Princess of Wales Transition ECHO

Prince and Princess of Wales Hospice

Contact the Prince and Princess of Wales Transition ECHO.
Find out more
Key contacts
Clinical Team Administrator

Stuart Duncan

Find out more
Any Project ECHO queries

Project ECHO

Find out more
Find definitions of transition from children's services into adulthood and how Hospice UK is responding to young people's needs with research, guidance and project funds

Transition from children's services into adulthood

Find out what support young people need when they are transitioning from children's services into adulthood and how Hospice UK can help you provide the appropriate care.

Find out more

References

1. Fraser, L, Gibson-Smith, D, Jarvis, S, Norman, P, Parslow, R. ‘Make Every Child Count’: Estimating current and future prevalence of children and young people with life-limiting conditions in the United Kingdom. Final Report. Together for Short Lives. 2020.