Left hand column content HTML Hospice Activity and Contracting Data Collation Hospice name* Please Select ACCORD Hospice Acorns Children's Hospice Trust Alexander Devine Children's Hospice Service Alice House Hospice Ardgowan Hospice Arthur Rank Hospice Charity Ashgate Hospicecare Barnsley Hospice Beaumond House Hospice Care Bethesda Hospice Birmingham Hospice Bluebell Wood Children's Hospice Blythe House Hospice Bolton Hospice Bracken Trust Bury Hospice Butterfly Hospice Butterwick Hospice Care Campden Home Nursing CIO Children's Hospice South West Children's Hospices Across Scotland (CHAS) City Hospice Claire House Children's Hospice Compton Care Cornwall Hospice Care Cransley Hospice Cynthia Spencer Hospice Demelza Hospice Care for Children - Demelza Kent Derian House Children's Hospice Derwentside Hospice Care Foundation - Willow Burn Hospice Dorothy House Hospice Care Douglas Macmillan Hospice Dove Cottage Day Hospice Dove House Hospice Dr Kershaw's Hospice East Anglia's Children's Hospices East Cheshire Hospice East Lancashire Hospice Eden Valley Hospice Ellenor Farleigh Hospice Florence Nightingale Hospice Charity Forest Holme Hospice Charity Forget Me Not Children's Hospice Foyle Hospice Francis House Children's Hospice Friends of Roxburghe House Garden House Hospice Great Oaks Hospice Greenwich & Bexley Community Hospice Halton Haven Hospice Harlington Hospice Association Haven House Children's Hospice Havens Hospices Heart of Kent Hospice Helen and Douglas House Hospice Care for Children and Young Adults Highland Hospice Hope House Childrens Hospice Hospice at Home West Cumbria Hospice at Home, Carlisle and North Lakeland Hospice in the Weald Hospice Isle of Man Hospice of St Francis Hospice of the Good Shepherd Hospice of the Valleys/Hosbis y Cymoedd HospiceCare North Northumberland Hospiscare Isabel Hospice Jersey Hospice Care Jessie May John Eastwood Hospices Trust Julia's House Kate's Home Nursing Katharine House Hospice (Banbury) Katharine House Hospice (Stafford) Keech Hospice Care Kemp Hospice Kilbryde Hospice Kirkwood Hospice Lakelands Hospice Les Bourgs Hospice Lewis-Manning Hospice Care Lindsey Lodge Hospice Longfield LOROS Leicestershire and Rutland Hospice Macmillan Caring Locally Marie Curie (Head office) Marie Curie Hospice, Belfast Marie Curie Hospice, Bradford Marie Curie Hospice, Cardiff and the Vale Marie Curie Hospice, Edinburgh Marie Curie Hospice, Glasgow Marie Curie Hospice, Hampstead Marie Curie Hospice, Liverpool Marie Curie Hospice, Newcastle Marie Curie Hospice, West Midlands Marie Curie Nursing Team (England) Marie Curie Nursing Team (Northern Ireland) Marie Curie Nursing Team (Scotland) Marie Curie Nursing Team (Wales) Martin House Martlets Hospice Mary Ann Evans Hospice Mary Stevens Hospice Mountbatten Isle of Wight Naomi House and Jacksplace Children's Hospice Nightingale House Hospice Noah's Ark Children's Hospice North Devon Hospice North London Hospice Northern Ireland Hospice Nottinghamshire Hospice Oakhaven Hospice Overgate Hospice Paul Sartori Foundation Peace Hospice Care Pendleside Hospice Phyllis Tuckwell Hospice Pilgrims Hospices In East Kent Primrose Hospice Prince and Princess of Wales Hospice Princess Alice Hospice Prospect Hospice Queenscourt Hospice Rainbows Hospice for Children and Young People Rennie Grove Hospice Care Richard House Children's Hospice Rosemary Foundation - Hospice at Home Rossendale Hospice Rotherham Hospice Rowcroft - The Torbay and South Devon Hospice Royal Trinity Hospice Saint Catherine's Hospice Saint Francis Hospice Saint Michael's Hospice Salisbury Hospice Charity Severn Hospice Shalom House Shipston Home Nursing Shooting Star Children's Hospices Sidmouth Hospice at Home Skanda Vale Hospice Sobell House Hospice Charity Ltd South Bucks Hospice Southern Area Hospice Services Springhill Hospice St Andrew's Hospice (Grimsby) St Andrew's Hospice (Lanarkshire) St Ann's Hospice St Barnabas Hospices St Barnabas Lincolnshire Hospice St Benedict's Hospice Charity St Catherine's Hospice (Crawley) St Catherine's Hospice, Lancashire St Christopher's Hospice St Clare West Essex Hospice Care Trust St Columba's Hospice St Cuthbert's Hospice St David's Foundation Hospice Care St David's Hospice St Elizabeth Hospice St Gemma's Hospice St Giles Hospice St Helena Hospice St John's Hospice (London) St John's Hospice, Lancaster St Joseph's Hospice (London) St Joseph's Hospice Association St Kentigern Hospice St Leonard's Hospice St Luke's Cheshire Hospice St Luke's Hospice (Basildon) St Luke's Hospice (Harrow And Brent) St Luke's Hospice (Sheffield) St Luke's Hospice Plymouth St Margaret of Scotland Hospice St Margaret's Somerset Hospice St Mary's Hospice St Michael's Hospice (Hastings & Rother) St Michael's Hospice (Hereford) St Michael's Hospice (North Hampshire) St Nicholas Hospice Care St Oswald's Hospice St Peter & St James Hospice St Peter's Hospice St Raphael's Hospice St Richard's Hospice St Rocco's Hospice St Vincent's Hospice St Wilfrid's Hospice (Chichester) St Wilfrid's Hospice (Eastbourne) Strathcarron Hospice Sue Ryder Sue Ryder - Duchess of Kent Hospice Sue Ryder - Leckhampton Court Hospice Sue Ryder - Manorlands Hospice Sue Ryder - Nettlebed Hospice Sue Ryder - St John's Hospice Sue Ryder - Thorpe Hall Hospice Sue Ryder - Wheatfields Hospice Teesside Hospice Care Foundation Thames Hospice The Ayrshire Hospice The Darlington & District Hospice Movement (St Teresa's Hospice) The Friends of Wisdom Hospice Ltd The Myton Hospices The Norfolk Hospice, Tapping House The Prince of Wales Hospice The Rowans Hospice The Shakespeare Hospice Treetops Hospice Care Trinity Hospice and Palliative Care Services Ty Hafan Ty Olwen Trust Fund Tynedale Hospice at Home Wakefield Hospice Weldmar Hospicecare Weston Hospicecare Wigan and Leigh Hospice Willen Hospice Willow Wood Hospice Willowbrook Hospice Winchester Hospice Charity Wirral Hospice St John's Woking & Sam Beare Hospice Woodlands Hospice Zoe's Place - Baby Hospice Hospice type* Please Select Adults Children Both Financial Year* Please Select April 2021 - March 2022 April 2022 - March 2023 Email address* example@example.com Back Next Demographics Financial year April 2021 - March 2022 Demographics Financial year April 2022 - March 2023 Total unique patients (active caseload) - all services Defined as unique palliative patients who accessed at least one hospice service in the financial year: including those already actively accessing at least one hospice service at midnight on 01.04 at the start of the contract year plus those who began accessing at least one hospice service during the contract year up to midnight on 31.03, either as a brand new patient or re-referred (must entail at least one material, meaningful contact with a clinician or care worker, ie not just administrative call) Total unique patients (active caseload) - all services (adults) Defined as unique palliative patients who accessed at least one hospice service in the financial year: including those already actively accessing at least one hospice service at midnight on 01.04 at the start of the contract year plus those who began accessing at least one hospice service during the contract year up to midnight on 31.03, either as a brand new patient or re-referred (must entail at least one material, meaningful contact with a clinician or care worker, ie not just administrative call) Total unique patients (active caseload) - all services (children) Defined as unique palliative patients who accessed at least one hospice service in the financial year: including those already actively accessing at least one hospice service at midnight on 01.04 at the start of the contract year plus those who began accessing at least one hospice service during the contract year up to midnight on 31.03, either as a brand new patient or re-referred (must entail at least one material, meaningful contact with a clinician or care worker, ie not just administrative call) Total unique patients (active caseload) - all services (adults and children) Defined as unique palliative patients who accessed at least one hospice service in the financial year: including those already actively accessing at least one hospice service at midnight on 01.04 at the start of the contract year plus those who began accessing at least one hospice service during the contract year up to midnight on 31.03, either as a brand new patient or re-referred (must entail at least one material, meaningful contact with a clinician or care worker, ie not just administrative call) Number of patients - Age Range For all the demographics categories there is a ‘total check’ that will check your total for each category matches your Total Unique Patients (Active Caseload) figure. For any data that you can't or don't collect or record, please add the patient number to the 'not known' field. This will include reasons such as part-year collections or not relevant for certain services as well as systems that just don’t record it. We would like to work with hospice data analysts over the next year to look in more depth at these reasons and what we can do to improve any of them. Evidencing equity of service provision is a key strategy aim for the hospice and end of life care sector. All data is useful data. Neonatal 0 - 15 16 - 18 19 - 25 26 - 44 45 - 64 65 - 74 75 - 84 85 + Not recorded Total check The total number of patients entered in this section does not match the total number of unique patients Number of patients - Ethnicity Asian / Asian British Black / Black British / Caribbean / African Mixed / Multiple ethic groups White Other ethnic group Prefer not to say (person asked but declined) Not recorded (person not asked) Total check The total number of patients entered in this section does not match the total number of unique patients Asian / Asian British (adults) Black / Black British / Caribbean / African (adults) Mixed / Multiple ethic groups (adults) White (adults) Other ethnic group (adults) Prefer not to say (person asked but declined) (adults) Not recorded (person not asked) (adults) Total check (adults) The total number of patients entered in this section does not match the total number of unique patients Asian / Asian British (children) Black / Black British / Caribbean / African (children) Mixed / Multiple ethic groups (children) White (children) Other ethnic group (children) Prefer not to say (person asked but declined) (children) Not recorded (person not asked) (children) Total check (children) The total number of patients entered in this section does not match the total number of unique patients Number of patients - Religion Buddhist Christian Hindu Jewish Muslim Sikh Any other religion No religion Prefer not to say (person asked but declined) Not recorded (person not asked) Total check The total number of patients entered in this section does not match the total number of unique patients Buddhist (adults) Christian (adults) Hindu (adults) Jewish (adults) Muslim (adults) Sikh (adults) Any other religion (adults) Prefer not to say (person asked but declined) (adults) Not recorded (person not asked) (adults) Total check (adults) The total number of patients entered in this section does not match the total number of unique patients Buddhist (children) Christian (children) Hindu (children) Jewish (children) Muslim (children) Sikh (children) Any other religion (children) No religion (adults) No religion (children) Prefer not to say (person asked but declined) (children) Not recorded (person not asked) (children) Total check (children) The total number of patients entered in this section does not match the total number of unique patients Number of patients - Sex This should be the sex registered / gender assigned at birth, but clinical systems may currently combine sex and 'gender'. Do you ask record sex and gender identity seperately? YesNo Female Male Not recorded Female (Adults) Male (Adults) Not recorded (Adults) Female (Children) Male (Children) Not recorded (Children) Number of patients - Gender Stated In addition to figures recorded in the previous three fields, please give the figures you have for any patients who identified and were recorded instead as non-binary or trans man or trans woman Non-binary Trans man Trans woman Other gender identity Total check The total number of patients entered in this section does not match the total number of unique patients Non-binary (Adults) Trans man (Adults) Trans woman (Adults) Other gender identity (Adults) Total check (Adults) The total number of patients entered in this section does not match the total number of unique patients Non-binary (Children) Trans man (Children) Trans woman (Children) Other gender identity (Children) Total check (Children) The total number of patients entered in this section does not match the total number of unique patients Number of Patients - Gender Identity Gender identity the same as sex registered at birth Gender identity different from sex registered at birth Prefer not to say (person asked but declined) Not recorded Total check The total number of patients entered in this section does not match the total number of unique patients Gender identity the same as sex registered at birth (Adults) Gender identity different from sex registered at birth (Adults) Prefer not to say (person asked but declined) (Adults) Not recorded (Adults) Total check (Adults) The total number of patients entered in this section does not match the total number of unique patients Gender identity the same as sex registered at birth (Children) Gender identity different from sex registered at birth (Children) Prefer not to say (person asked but declined) (Children) Not recorded (Children) Total check (Children) The total number of patients entered in this section does not match the total number of unique patients If gender identity different from sex registered at birth, did the patient state an identity? Stated non-binary Stated trans man / male Stated trans woman / female Stated other gender identity Not stated Stated non-binary (Adults) Stated trans man / male (Adults) Stated trans woman / female (Adults) Stated other gender identity (Adults) Not stated (Adults) Stated non-binary (Children) Stated trans man / male (Children) Stated trans woman / female (Children) Stated other gender identity (Children) Not stated (Children) Number of Patients - Sexual Orientation Bisexual Gay or lesbian Straight / heterosexual All other sexual orientations Prefer not to say (person asked but declined) Not recorded (person not asked) Total check The total number of patients entered in this section does not match the total number of unique patients Bisexual (Adults) Gay or lesbian (Adults) Straight / heterosexual (Adults) All other sexual orientations (Adults) Prefer not to say (person asked but declined) (Adults) Not recorded (person not asked) (Adults) Total check (Adults) The total number of patients entered in this section does not match the total number of unique patients Bisexual (Children) Gay or lesbian (Children) Straight / heterosexual (Children) All other sexual orientations (Children) Prefer not to say (person asked but declined) (Children) Not recorded (person not asked) (Children) Total check (Children) The total number of patients entered in this section does not match the total number of unique patients Number of Patients - Primary Diagnosis / Life Limiting Condition Total cancer (oncology) Total non-cancer (other) Not Recorded Total check The total number of patients entered in this section does not match the total number of unique patients Total cancer (oncology) (Adults) Total non-cancer (other) (Adults) Not Recorded (Adults) Total check (Adults) The total number of patients entered in this section does not match the total number of unique patients Total cancer (oncology) (Children) Total non-cancer (other) (Children) Not Recorded (Children) Total check (Children) The total number of patients entered in this section does not match the total number of unique patients Non-cancer (not oncology) breakdown FOR ADULTS PRIMARY DIAGNOSIS (ICD10 codes) Click here for a list of ICD10 codes HIV / AIDS (B20 - B24) Motor neurone disease (G12) Dementia including Alzheimer's (G30, F00 - F03) Neurological conditions (excluding MND and Alzheimer's) (G00 - G99, excl G12 / G30) Diabetes mellitus (E10 - E14) Heart failure, stroke and other heart & circulatory (I00 - I99) Chronic respiratory disease (J40 - J70) Liver failure, chronic liver disease, other non-malignant liver disease (K70 - K77) Chronic renal failure (N18) All other non-cancer (not oncology) diagnoses Total check The total number of patients entered in this section does not match the total number of unique patients Non-cancer (not oncology) breakdown FOR CHILDREN LIFE-LIMITING CONDITION (ICD10 code letter) Click here for a list of ICD10 codes Neurology (A, F, G) Haematology (B, D) Metabolic (E) Congenital (Q) All other non-cancer (not oncology) diagnoses Total check The total number of patients entered in this section does not match the total number of unique patients Unique patients Total unique patients - inpatients If you can separate out unique inpatients from all services patients, please put that sub-total here (this figure is independent of the figure in the next field) Total unique patients - community If you can separate out unique patients seen by all your community teams (at patient's residence) from all services patients, please put that sub-total here (this figure is independent of the figure in the previous field) Total unique carers / loved ones - all services Defined as unique carers or loved ones (of palliative patients past and present) who accessed at least one hospice service, including bereavement, in the contract year (must entail at least one material, meaningful contact with a clinician or care worker, ie not just administrative call) Total unique carers / loved ones - bereavement if you can separate out unique carers / loved ones who accessed your bereavement services from those who accessed any of your other services in the previous field, please put that sub-total here Total unique patients - inpatients (Adults) If you can separate out unique inpatients from all services patients, please put that sub-total here (this figure is independent of the figure in the next field) Total unique patients - community (Adults) If you can separate out unique patients seen by all your community teams (at patient's residence) from all services patients, please put that sub-total here (this figure is independent of the figure in the previous field) Total unique carers / loved ones - all services (Adults) Defined as unique carers or loved ones (of palliative patients past and present) who accessed at least one hospice service, including bereavement, in the contract year (must entail at least one material, meaningful contact with a clinician or care worker, ie not just administrative call) Total unique carers / loved ones - bereavement (Adults) if you can separate out unique carers / loved ones who accessed your bereavement services from those who accessed any of your other services in the previous field, please put that sub-total here Total unique patients - inpatients (Children) If you can separate out unique inpatients from all services patients, please put that sub-total here (this figure is independent of the figure in the next field) Total unique patients - community (Children) If you can separate out unique patients seen by all your community teams (at patient's residence) from all services patients, please put that sub-total here (this figure is independent of the figure in the previous field) Total unique carers / loved ones - all services (Children) Defined as unique carers or loved ones (of palliative patients past and present) who accessed at least one hospice service, including bereavement, in the contract year (must entail at least one material, meaningful contact with a clinician or care worker, ie not just administrative call) Total unique carers / loved ones - bereavement (Children) if you can separate out unique carers / loved ones who accessed your bereavement services from those who accessed any of your other services in the previous field, please put that sub-total here Submit Should be Empty:
