Hospice UK responds to new Marie Curie research showing that people with dementia receive little specialist support at end of life

Sep 19, 2017

New research published today by the Marie Curie Palliative Care Research Department at University College London, highlights that people with dementia receive little specialist support at end of life, despite high levels of need and that healthcare services are not currently tailored to support their complex needs and symptoms.

Commenting in response, Carole Walford, Chief Clinical Officer, at Hospice UK said:

“It is concerning that many people with dementia can not access the specialist support they need at the end of life; especially when this support is shown to make a positive difference not only to their quality of life but also to their carers and family .

“A growing number of hospices are working in partnership across health and social care settings to develop support for people with dementia who are approaching the end of their life. A skilled full assessment is needed not to address the individual needs of the person with dementia but often also for their emotionally and physically tired carer.

“Hospice UK recognises that skilled compassionate interventions should be offered and is leading efforts to development communities of practice. Communities of practice bring together health and social care to share current thinking and identify what is good care in all settings. Through this approach we hope to maximise access to specialist resource and knowledge and so increase access to appropriate care  for this growing population within our society.“   

Notes to Editor:

  • Hospice UK is the national charity for hospice care and the only membership body for organisations providing hospice care. We support and champion the work of more than 200 of these organisations across the UK.
  • Hospices, and other organisations which provide hospice care, offer vital care for people with terminal or life-limiting conditions and also support their families and carers.
  • For further information about hospice care visit our website www.hospiceuk.org or follow us on Twitter @hospiceukPA.
  • Get all the latest news from the hospice and palliative care sector, as well as patient stories, on ehospice UK at: www.ehospice.com/uk This service is managed by Hospice UK. You can also follow ehospice news on Twitter at @ehospicenews

Media enquiries: 

Please contact Suzanne Stevenson, Head of Media and PR, on 020 7520 8296 or by email at s.stevenson@hospiceuk.org.  For out of hours media enquiries please call 07881 940 318.

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