We are campaigning for hospice care both at a national level in partnership with other end of life care charities, and at a local level by providing hospices with resources to support their advocacy activities.
We have joined forces with a coalition of charities who support people at the end of their lives - Cicely Saunders International, Macmillan Cancer Support, Marie Curie Cancer Care, the Motor Neurone Disease Association, the National Council for Palliative Care and Sue Ryder - to campaign for the Government to prioritise end of life care.
The End of Life Care Coalition is urging the Government to adopt the recommendations of the landmark independent review of choice at the end of life, which was published over a year ago in February 2015. Recommendations in the review include access to 24/7 community nursing and a record of a person’s preferences for care at the end of life.
According to new figures released by our joint report 'On the brink: The future of end of life care' an estimated 48,000 people in England experienced poor care in the last three months of their life. This represents 10 per cent of people who died in 2014 and is based on responses from relatives and carers collected by the Office of National Statistics.
Our report argues that shifting care out of hospitals will be better for people at the end of life and more cost effective but also warns that the right support needs to be in place at home and in other settings to enable this to happen.
We have produced resources for local campaigning, to help hospices raise awareness of hospice care with local decision-makers.
Our hospice care manifesto is aimed at MPs and Councillors. As well as raising awareness of hospice care, it sets out three key calls that advocates can work with hospices to achieve in their areas.
These calls are:
- Hospice care a priority in your community
- Funding for hospice care to reflect local need
- Fast access to social care for people with terminal or life-limiting conditions.
Toolkit for influencing locally
We have also produced a guide for hospices that is designed to support local advocacy activities.
'Influencing locally: A toolkit for hospices in England' will help hospices to identify and build relationships locally, and to raise awareness and influence key statutory bodies.
Whilst the guide focuses on the statutory structures in England, which has seen a decentralised NHS established since 2013, much of it is relevant for hospices across the four nations, particularly in the ‘how to influence’ and ‘more routes to decision-makers’ sections.
A guide designed to support hospices to identify and build relationships locally, and to raise awareness and influence key statutory bodies. It is a roadmap to ensure that the needs of people with terminal or life-limiting conditions, and hospice care, are on the agenda of local decision-makers.
Key facts and statistics about hospice care.
More information on the three key calls and links to relevant reports.
Sets out the three key calls that prospective MPs can help hospices achieve in their areas with the local health and care structures.
Email our policy and advocacy team if you want to learn more about this work, or if you have any feedback on the resources.