Project ECHO has been developed and is owned by the Regents of the University of New Mexico (“UNM”), the rights to which have been assigned or licensed to the University of New Mexico Health Sciences Center ("UNMHSC"). More about Project ECHO can be found on the following website: https://echo.unm.edu/
If you wish to participate in any way in the "ECHO" movement, some information which comes within the DPA definition of personal data is required by Project Echo in the United States. HUK and UNMHSC are working together to ensure there is an agreed framework to safeguard this personal data. At present, to ensure that the requirements of UK law are met, HUK requires your permission to transfer and store your data within the US before you can participate in an “ECHO” session or in any aspect of the ECHO movement.
How will my data be used?
Your data will be stored digitally within an application that tracks the growth, and activities, of the ECHO movement. The data from participants is then “aggregated” (i.e. anonymised, combined and measured in various ways for analysis) and used for reporting to funding and governmental entities, in public-facing mappings, visualisations, and directories of the movement, for research related to the movement, for data quality assurance activities, in communications and surveys related to the movement, and in decision-making related to new initiatives. UNMHSC will not use your data for any other purposes.
Who, other than staff at Hospice UK, has access to my data?
In order for the ECHO Project to report on the ECHO movement, access is granted to a restricted number of UNMHSC staff - the Director of IT, lead iECHO application developer, information security lead, quality assurance lead, data visualization lead, partner liaisons, Director of ECHO Replication, and other members of the ECHO Institute on an as-needed basis.
Where will your data be stored?
Your data will be securely stored within the UNMHSC's data centre. The data centre is regularly tested for its security, and the UNMHSC is working towards gaining HITRUST certification. Access to your data is strictly limited and password protected. Your data is encrypted whilst transferred to the UNMHSC's data centre.
Accuracy, Access & Retention
HUK will ensure that the data stored within the UNMHSC is accurate. Upon request, HUK can provide details of your stored personal data. The UNM has a published data retention policy and your personal data can be removed at your request, but this may take up to one month to be cleared from UNM backups.