Susan undertook nurse training followed by specialist paediatric training at Great Ormond Street Hospital, London, where she began working with children with cystic fibrosis. Following a Masters degree in psychology, Susan completed her doctoral thesis in Behavioural Sciences at the Institute of Child Health, University College London.
Susan has been working with children and adults with CF for over 30 years. Her areas of interest and research include adolescence, burden of care, fertility and pregnancy and end of life issues. She is involved nationally and internationally with standards of care for CF, is a past-board member of the European Cystic Fibrosis Society (2006-2014) and reviews for a number of journals. Susan also runs an international, multidisciplinary course on CF and has created a web-based version of the course (www.cfcourse.co.uk).