Data and insights

We are developing a new hospice data set and a population-based needs assessment tool.

Developing UK-wide hospice activity and patient level data

We have recently been awarded a grant that will enable us to take forward the first phase of our hospice data project. The project will include the development of a new hospice data set that will generate more reliable data on hospice activity, and extend into patient and service user demographics such as diagnosis, ethnicity and faith.

In the first year of the project we will be working with a small number of hospices to develop, trial and pilot the data set. We will share more details with members, including how to get involved, soon.

Population-based needs assessment tool

We are currently identifying a partner organisation to help us deliver a web-based population-based needs assessment tool for end of life care.

The tool will support hospice care providers and other stakeholders to understand local need, identify gaps in provision and support service design and delivery of end of life care. Our goal is for hospice care providers to reach more people who need hospice care through improved insights driving better service design and delivery.

The project, which is due to be launched at our annual conference in November, is specifically concerned with providing hospice care organisations and other stakeholders with a way to access and develop actionable insights on local need for end of life care from published population data.

As part of the development work, we will be gathering views from hospices via a survey – more details will be circulated to members soon.

Further information

Contact the team for further information on our data and intelligence work.

What does hospice care mean to you?