Getting the most out of hospice care
Good care means that you are at the centre of decisions about your care.
Good care is about feeling able to talk to the people who are looking after you about what matters to you so that you can create a care plan together that is personalised to you. It’s also about making sure you have the information you need to make those choices about your care, and that you have opportunity to involve your family or those important to you as much as they wish.
You do not need to face your concerns alone
As someone who needs care, or as a carer, you should expect the staff to ask you about your needs and to do their best to get you the care and support to meet those needs, or direct you to other people or organisations that can help.
The way care is provided at evenings, weekends and on Bank Holidays varies depending on the area in which you live. For example, support and care services might include a 24-hour telephone helpline or night-sitting service. In particular, it's helpful to know what information you should be ready to provide over the phone. This might include:
- What stage you or the person you are caring for is at in their illness (or what you have been told about this);
- What medication you or they have recently taken;
- When you or they were last seen by a doctor or nurse;
- Whether you or they have an advance care plan and had made prior decisions about treatment, or future admission to hospital.
Advance care planning
For more information about advance care planning, see our booklet: ‘Planning for your future care: a guide’. The booklet also includes information about making a Lasting Power of Attorney in England and Wales. Download the booklet from the Dying Matters website.
Sometimes it can be difficult to start a conversation about what is important to you and what the future might bring. Our booklet, ‘One last thing…’ has tips on getting a conversation started and subjects that you might want to talk about with those close to you.
Our booklet ‘Time to talk’ also has advice on talking to people living with dementia about end of life care.
You can download both booklets at from the Dying Matters website.