Tackling inequality and widening access to hospice care

Access to hospice care is currently inequitable. People with conditions such as dementia, heart and liver failure and frailty would benefit greatly from hospice care but are not widely being referred.
Hospice UK is committed to tackling inequality in the provision of end of life care

Many groups – faith groups, the LGBT community, homeless people, prisoners, Gypsies and Travellers – feel they are disadvantaged towards the end of life with no easy access to appropriate hospice care.

How we are making a difference

  • A new initiative, funded by NHS England, will see us work with a range of partners to improve end of life care for homeless people, Gypsies and Travellers, and people from LGBT communities;
  • We are launching a major new project, supported by the Peter Sowerby Foundation, that will develop and improve patient demographic and hospice activity data. This will help hospices make better use of data to develop services and improve the care for patients and their families;
  • We held a round table event with 30+ participants working with homeless people across London to consider the current challenges and identify key areas for future collaboration;
  • We are delivering learning and training events, online forums and other resources for hospice staff to help them understand the implications of and implement the Equalities Act 2010;
  • In partnership with the British Heart Foundation we published ‘Heart failure and hospice care: how to make a difference’. This important publication looks at how people living with advanced heart failure can benefit from personalised palliative care;
  • We awarded 17 grants totalling £502,238 from our St. James’s Place Foundation grants programme, to facilitate a hospice-enabled approach to heart failure and support hospices to work collaboratively with their colleagues in cardiology. Over the next year we will work with projects to help them develop and achieve their goals.

What does hospice care mean to you?