Advocacy

We provide a strong voice for hospice care in the parliaments and assemblies around the UK, and support local health and care leaders to improve access to hospice care.

Houses of Parliament, Westminster

National advocacy


End of Life Care Campaign

Hospice UK is campaigning with the coalition of end of life care charities – Cicely Saunders International, Macmillan Cancer Support, Marie Curie, The Motor Neurone Disease Association and Sue Ryder – for high quality, person-centred care for people approaching the end of their life, wherever and whenever they need it.

We are working with the Government and NHS England to support the delivery of the National Commitment on end of life care. This Commitment needs to be embedded across all health and care programmes – including Sustainability and Transformation Partnerships – and backed up with adequate resources, robust and evidence-based evaluation and an annual progress review.

The Health & Wellbeing Alliance

Hospice UK is part of the Health and Wellbeing Alliance - a group of 21 a group of 21 voluntary, community and social enterprise organisations that represent communities who share protected characteristics or that experience health inequalities.
Hospice UK, Marie Curie and Together for Short Lives are part of the Alliance, working together as the Palliative and End of Life Care Consortium.

APPG on Hospice and Palliative Care

The All-Party Parliamentary Group (APPG) on Hospice and Palliative Care raises awareness and promotes the needs of people living with terminal or life-shortening conditions, and their families and carers, in Parliament; and promotes policies to improve care and support that are person-centred and evidence-based.

Local advocacy

We are supporting and equipping decision makers, commissioners and providers to improve access to hospice care. We have produced resources to support hospices’ local advocacy activities, and will be publishing further resources soon.

Toolkit for influencing locally

This guide is designed to support hospices’ local advocacy activities.'Influencing locally: A toolkit for hospices in England' will help hospices to identify and build relationships locally, and to raise awareness and influence key statutory bodies.

Whilst the guide focuses on the statutory structures in England, which has seen a decentralised and devolved NHS established since 2013, much of it is relevant for hospices across the four nations, particularly in the ‘how to influence’ and ‘more routes to decision-makers’ sections.

A low priority?

This report explores how local statutory structures in England address the palliative and end of life care needs of adults and children within their planning and decision-making.

The local priority given to palliative and end of life care, as evidenced by its inclusion in needs assessments and strategies, varies widely across the country.

Further information

Contact the team for further information on our national and local advocacy.

Campaigning resources

  • Feb 15, 2018
    Lobbying (Scotland) Act 2016
    This briefing is to support Hospice UK members in their preparations for meeting the requirements of the new lobbying legislation coming into force on 12 March 2018.
  • Feb 08, 2016
    Influencing locally: A toolkit for hospices in England
    A guide designed to support hospices to identify and build relationships locally, and to raise awareness and influence key statutory bodies. It is a roadmap to ensure that the needs of people with terminal or life-limiting conditions, and hospice care, are on the agenda of local decision-makers.

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