Dementia end of life care: Community of Practice (CoP)

This CoP provides a highly interactive forum for practitioners working in either the fields of dementia or palliative and end of life care to share knowledge and skills, and learn from each other.

This Community of Practice is a joint venture between Dementia UK and Hospice UK and seeks to bring together practitioners and clinical leaders keen to build their skills, knowledge and confidence in providing high quality palliative and end of life care for people and their families affected by dementia. 

Community of Practice Meetings 

The meetings are facilitated by Dr Karen Harrison-Dening, Head of Research and Publications, Dementia UK and the Practice Development Lead, Hospice UK. At each event we work with the Community of Practice to agree the theme for the next meeting and invite an excellent range of speakers; both experts in the field as well as colleagues from the CoP sharing their knowledge and expertise.

Summaries of previous events together with copies of the presentations are now available to download.

The most recent meetings

26 October 2020

At our most recent webinar on Advance Care Planning, we were delighted to welcome speakers
Dr Julie Kinley, Research and Clinical Innovation Project Lead, Hospice UK, Dr David-Peter Lynch, Specialty Doctor in Palliative Care, Ardgowan Hospice and Dr Tracy O’ Regan, Society & College of Radiographers.

Please visit our 'previous events' page where you can find out what took place and access resources from the day.

29 June 2020

At this successful webinar, we were delighted Professor Justine Schneider presented on 'Emotional Labour and Hospital Health Care Assistants'. Professor Schneider talked about the play 'Inside out of Mind' which was written by Tanya Myers. Please visit our 'previous events' page where you can find out what took place and access resources from the day. 

15 June 2020

This included a presentation by Dr Jane Rowley on the Nottingham DEEP Support Hub and how they have adapted service delivery in response to COVID 19. We also have notes from the break out discussions that took place. Please visit our 'previous events' page where you can find out what took place and access resources from the day.

1 June 2020

This included a presentation from Liz Bryan, Palliative Care Nurse, Counselling Psychotherapist and Educationalist, on 'How to work at the frontline during COVID-19 and survive'. Liz introduced her new mnemonic S-T-R-E-T-C-H, designed especially to encourage self-care at a time of significant uncertainty, loss and adjustment. Please visit our 'previous events' page where you can find out what took place and access resources from the day. 

18 May 2020 Webinar - Covid-19

 Thank you to all who attended and engaged in our Zoom break out rooms to continue our discussion on common care issues and Covid-19 and ways of working differently, including an update on a care home perspective. Please visit our 'previous events' page where you can find out what took place and access resources from the day. 

4 May 2020 Webinar - Covid-19

Thank you to all who attended and engaged in our Zoom break out rooms, to discuss: 
common care issues and Covid-19 and ways of working differently. Please visit our 'previous events' page where you can find out what took place and access resources from the day.

‘New Horizons’ meeting 17 October 2019

Thank you to all who attended this meeting at Toynbee Hall, London. Please visit our 'previous events' page where you can find out what took place and access resources from the day.

The next meeting

Please do keep visiting your Community of Practice web page to look out for future announcements. 

The meeting as usual welcomes all members of the Community of Practice so please do join the Community if you wish to. Thank you. 

Get involved!

The Dementia Community of Practice has a lot to offer, including our new Dementia ECHO which will launch early 2019.

The Community of Practice meets twice a year and has a monthly newsletter which is sent out the third week of each month.

If you are interested in receiving our newsletters, please register here. 

The newsletter features event announcements, relevant articles and resources, calls for research and participation and updates on what is going on in the world of Dementia. If you would like to contribute to the newsletter, please email us and thank you.

If you would like to have a look at the kind of content you can expect, you can view our previous newsletters below.

August 2018

September 2018

October 2018

November 2018

January 2019


February 2019

March 2019

April 2019

May 2019

June 2019

July 2019

August 2019 - no issue

September 2019

October 2019

November 2019

(No December 2019 issue)

January 2020


February 2020

March 2020

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