Dementia end of life care: Community of Practice (CoP)

This CoP provides a highly interactive forum for practitioners working in either the fields of dementia or palliative and end of life care to share knowledge and skills, and learn from each other.

This CoP is a joint venture between Dementia UK and Hospice UK and seeks to bring together practitioners and clinical leaders keen to build their skills, knowledge and confidence in providing high quality palliative and end of life care for people and their families affected by dementia. 

Group meeting

The meetings are facilitated by Dr Karen Harrison-Dening, Director of Admiral Nursing, Dementia UK and Marie Cooper Practice Development Lead, Hospice UK. At each event we work with the CoP to agree the theme for the next meeting and invite an excellent range of speakers; both experts in the field as well as colleagues from the CoP sharing their knowledge and expertise.

Summaries of previous events together with copies of the presentations are now available to download.

Next meeting

The next meeting will be held on Wednesday 14 June at the Hospice UK, 34 – 44 Britannia Street, London WC1X 9JG.

Registration is from 9.30am, for a 10am start and finish at 4pm and is free to attend and refreshments and lunch are provided.

The content of the programme includes:

  • Legal and ethical issues around end of life care in dementia with a Q&A interactive -  Dr Shibley Rahman; Dr Rahman will cover the basic ‘rule book’ in English law relating to the assessment of capacity in dementia under the Mental Capacity Act and compare the fundamental principles of substituted and “best interests” judgements. We will look at scenarios which may challenge practitioners on a daily basis related to particular ethical aspects of care eg capacity and consent, advance directives and best interests, covert medications, tensions between carer and patient wishes and preferences
  • Attending to emotional labour within ourselves and other team members - Marie Cooper
  • Exploring how hospices are individually and collectively responding to the challenge of Dementia – a qualitative study‘ - Emma Hodges CEO St Giles. Share her top level survey findings
  • Reflection on today’s learning - Dr Karen Harrison Dening 

You will need to register to secure a place. If you would like to attend please contact Amber Morgan. Please note space is limited and places are going fast so contact us soon to avoid disappointment.

Further dates for 2017 meetings are still to be announced.

If you are interested in joining the group and hearing more about upcoming meetings please contact us.

Get involved

If you would like to know more about the group or become a member please contact us.

What does hospice care mean to you?