Today the National Institute for Health and Care Excellence (NICE) publishes new guidance on the planning and management of end of life and palliative care for babies, children and young people with life-limiting conditions.
The new guideline – End of Life care for Infants, Children and Young People: Planning and Management – covers a range of issues such as advance care planning, hydration and nutrition and emotional and psychological support.
It aims to involve children, young people and their families in decisions about their care, and improve the support that is available to them throughout their lives.
Commenting in response, Dr Ros Taylor, MBE, Clinical Director, at Hospice UK, said:
“This guideline is a very valuable resource for all the professionals involved in children’s palliative care. We welcome in particular the focus on parallel planning and sensitive skilled communication, key aspects of care which are vitally important for families coping with the emotional and practical challenges of caring for a child with a life-limiting condition.
“Local children’s hospices are vital players in the care of dying children and we hope this guideline will raise awareness of the complexity of care they provide and the funds needed to support expansion of services.
“This guideline marks considerable progress, however, we are aware that more evidence is needed to support best practice in children's palliative care. Hospice UK is leading a major project to improve research in hospices across the UK which will help support this.”
Notes to Editor
- Hospice UK is the national charity for hospice care and the only membership body for organisations providing hospice care. We support and champion the work of more than 200 of these organisations across the UK.
- Hospices, and other organisations which provide hospice care, offer vital care for people with terminal or life-limiting conditions and also support their families and carers.
- For further information about hospice care visit our website www.hospiceuk.org or follow us on Twitter @hospiceukPA.
- Get all the latest news from the hospice and palliative care sector, as well as patient stories, on ehospice UK at: www.ehospice.com/uk This service is managed by Hospice UK. You can also follow ehospice news on Twitter at @ehospicenews.