Information for carers
This signposting resource is part of Hospice UK’s Compassionate Employers programme.
The earlier you can signpost a carer to support, the better. The needs and circumstances of a carer may change quickly depending on the health of the person they care for. It’s therefore important to check in with them regularly to see if they need any further guidance or support.
Here you will find signposting information for a range of support related to being a carer and practical guidance to help you or someone you know.
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What's on this page
Am I a carer?
Many carers don’t see themselves as carers and it can take an average of 2 years to acknowledge their role as a carer and the support that is available.
You are likely to be classified as a carer if:
- you help someone in your family, partner or friend who has an illness, disability, mental health problem or an addiction
- they cannot cope without support with everyday tasks
- you aren’t paid to support the person
Carers First have put together a short video to explain the different ways someone can be a carer.
- If you aren’t sure if you are a carer and want to speak to someone, contact your GP who can help you understand and direct you to services and support groups.
- Visit the NHS website for a range of resources
- A Carer’s Assessment helps you look at the impact your caring responsibilities has on your life and what social care support you might be entitled to
- The Carers UK Upfront guide will also take you straight to the information you need to know personalised to your specific circumstances
- Age UK have an Advice for Carers information guide to help understand the support on offer and practical tips and advice to look after the person you are caring for and most importantly yourself.
Carers Support Organisations
Carers UK
Carers UK is a national campaigning / lobbying organisation, their website has informative information with publications on benefits, carers’ rights, and help when leaving hospital as well as carers’ assessments, policy and carers’ health.
Telephone 020 7378 4999 or email: info@carersuk.org
Their Helpline is available from Monday to Friday, 9am - 6pm, Tel 0808 808 7777 or email advice@carersuk.org
NHS Support and Benefits for Carers
Includes information on carer's assessments, support from local councils, respite care and help for young carers. They also provide a list of organisations who offer a free helpline to discuss carer’s assessments including:
- Carers Direct on 0300 123 1053,
- Age UK on 0800 055 6112,
- Independent Age on 0800 319 6789
Support for different types of carer
There is also plenty of support, advice, information and guidance available for carers, whatever their situation, or who they are caring for.
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Upfront is a tool from Carers UK for people who are new to the maze of benefits and entitlements.
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Age UK is a leading national charity for older people. They provide support from their 125 local Age UK-branded communities throughout the UK.
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Macmillan Cancer Support offer emotional support via the Macmillan Support Line - 0808 808 00 00.
They also have an Online Community group and a chat line 7 days a week.
A range of free resources, online courses are available via the Macmillan Cancer Support Learn Zone.
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The NHS website explains the support young carers can receive from their schools, doctors and social workers and explains the Young Carers projects who can help a young carer have a break from home.
The Children's Society runs the Young Carers Festival and funds projects for young carers.
KIDS is an organisation specifically for carers under the age of 18. It runs regular clubs where you can meet other young carers as well as offering support, advice and information.
Action for Children can put you in touch with other young carers and has free places for young carers at its residential activity camps.
Carers Trust offers a list of services to support younger carers in their local area.
Citizens Advice has information on money, benefits and your rights as a young carer.
The National Careers Service has a helpline, web chat and email service about education and careers for teenagers. Support is also available up to the age of 25 for those who have learning difficulties or disabilities.
For advice and support with caring issues over the phone, call the Carers Direct helpline on 0300 123 1053.
If you're deaf, deafblind, hard of hearing or have impaired speech, you can contact the Carers Direct helpline using text phone or minicom number 0300 123 1004.
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FamilyCarersNet is UK-wide support service who support carers and families and offer live chat, and an online carer chat service and counselling.
Action for family carers has support for young carers and children as young as five years old and young people under 18 years of age with a Young Carers Club available.
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Dementia UK provides information and advice about dementia and Alzheimer’s, their dementia specialist Admiral Nurses are on hand for dedicated support and can help families manage complex needs.
There is a wide range of free information leaflets that can be downloaded from the website. Contact: 0800 888 6678.
The NHS has information about getting support as a carer for someone with dementia and the different ways you can support them.
Age UK provides free information and advice on a diverse range of topics including “living well with dementia”. Contact the Advice Line: 0800 678 1602
The Alzheimer’s Society is the UK’s leading dementia charity. Produces a wide range of publications in different formats to inform anyone affected by dementia.
Dementia Connect is Alzheimer’s Society’s dementia support service. It is free, easy to access, and puts you in touch with the right support with face to face local dementia advisers and via their support line 0333 150 3456.
Dementia Talking Point is an online community where anyone who is affected by dementia can receive support from the volunteers who have personal experience of caring for people with dementia.
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Local community groups and organisations may be able to offer support for carers, including those from minority communities. The initial point of contact is your GP who can direct you to support options in your local area and borough.
Action for Carers has a list of organisations that can help in different counties and nationally.
Carers.org has a full postcode search box to find carer support and replacement carer services near you and throughout UK wide network of partners and offer a chat to carers online support forum.
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Living Made Easy
This national charity previously known as the Disabled Living Foundation or DLF, provides independent advice on daily living equipment. Contact: 0300 999 0004.
Home Improvement Agencies
Offer free advice and information to older or disabled homeowners who wish to stay in their own homes but need specialist equipment or adaptations to do so. Contact: 0300 124 0315.
They could help if:
- someone in your family, partner or friend who has an illness, disability, mental health problem or an addiction
- they cannot cope without support with everyday tasks
- you aren’t paid to support the person
Practical support
- Carer's assessment
- Care standards and CQC
- Auto enrolment
- Access to care services this winter
- Needs assessment
- Care Act FAQ
- Finding care and support yourself
- Making complaints
- Direct payments
- Paying for care and support in England FAQ
- Young carers and carers of children under 18
St John’s Ambulance and the Red Cross can provide training on moving and handling, first aid and other practicalities relevant to carers.
Carers Trust have a list of local services in different boroughs.
Financial support
- Turn2us Benefits Calculator
- Carer's Allowance
- Personal Independence Payment
- Carer's Credit
- Disability Living Allowance
- Attendance Allowance
- Benefits for carers who are working age
- Benefits for carers who are pension age
- Benefit cap
- Housing Benefit
- Bedroom Tax
- Challenging a benefit decision
- Challenging a 'bedroom tax' decision
- Universal Credit
- Work focused interviews / work related activity