The co-production team was made up of Danyal, Elliot and Timothy. They shared their experience of living with a life-limiting condition and were fully involved in all stages of producing this resource. Hospice UK would like to thank them for their contribution.
Based on their own experience, the co-production team provided practical advice about:
what to expect when you've been diagnosed
support with school, college and talking to friends
the impact on loved ones
hospital admissions
planning ahead
transitioning back to 'normal life' post-treatment.
The resource contains direct quotes from people with lived experience, and signposts to helpful organisations.
A printed version of this resource is available on request to any health and social care organisations who wish to share it with young people using their services. This might include hospices, hospitals, social services and more.
If you would like to request some hard copies, please contact us with:
your name
the address we should send the booklets to
the number of A5 copies you would like to receive.
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Hospice care for children and young people
When a child or young person has a condition that means they are not expected to reach adulthood, they can be cared for by a hospice.
