Information after diagnosis

Marie Curie offers support to anyone who has recently been diagnosed with a terminal illness.

Call for free on 0800 090 2309 or join the online community to find more information about end of life, dying and bereavement and free booklets.

Together for Short Lives helps to support families caring for children with life-limiting or life-threatening conditions.

The NHS offers information on end of life care and coping with a terminal illness.

Dying Matters, a campaign by Hospice UK, provides a range of practical support and resources such as the Planning Ahead tool and the Dying Matters podcasts

Health Talk provides videos and written interviews of people talking about their feelings and emotions when told they had a life-limiting illness.

Self-refer yourself to NHS Psychological Therapies.

Call the Samaritans free helpline on 116 123 or visit Samaritans. Samaritans is a registered charity aimed at providing emotional support for anyone in emotional distress.

Marie Curie give an overview of your rights at work when you have a terminal illness, explains what sick pay is and how to find out if you are eligible for Statutory Sick Pay (SSP). They also offer information on how to support an employee with a terminal illness.

Citizens Advice explains how to check if you can claim for Employment and Support Allowance (ESA) if you have difficulty working because you’re sick.

CIPD has guidance about managing and supporting employees with a terminal illness and explains the legal obligations an employer has to protect employees with a long-term health condition.

ACAS explains what an absence policy should cover and looks at how workplaces deal with absence.

The NHS offers a list of charities that can provide support for free, explains the different types of benefits available and who is eligible for them as well as contact details for useful organisations.

The Gov.uk website explains the benefits you can receive if you are terminally ill and how to make a claim for yourself or someone else.

Age UK has practical information on writing a Will, power of attorney, managing your documents and accounts and getting financial help.

The Digital Legacy Association explains what a Digital Legacy is and why it is important to gather this information to help your family to legally access your accounts when you are gone.

Talking to children about dying

Marie Curie gives tips for having difficult conversations, such as talking to a child about dying.

Child Bereavement UK offer support, a useful information sheet for explaining death to a child and a directory to find support near you.

How to talk to people with learning disabilities about death

Talkabout is Marie Curie’s podcast to get inspiration and support to help you talk about death, dying and bereavement.

Sudden is an early intervention service which provides support on how to engage with people who have learning disabilities about loss, bereavement and end of life care. Call 0800 2600 400 10am and 4pm, Monday to Friday - immediate support.

Foundation for people with learning difficulties is part of the London South Bank University and they help make things better for people with learning disabilities by looking at how to change things that are not going well and suggest ways to make things better.