Transition from children's services into adulthood

Find definitions of transition from children's services into adulthood and how Hospice UK is responding to young people's needs with research, guidance and project funds

Moving from children’s services into adulthood can be a stressful time for young people with a life limiting condition.

On this page we’re sharing resources to help you support young people and their families effectively.

What's on this page

What is Transition?

'Transition' describes the purposeful and planned process of supporting young people to move from children's to adults' services [1]. The process should support children and young people’s medical, psychosocial, educational and vocational needs. 

What is the need?

The number of children and young people with life limiting conditions is increasing, and a growing number are living into adulthood [2].

As young people mature, their needs and preferences change. This means the models of care used to support them need to be adapted. If transition is not effectively planned and managed it can result in:

  • the young person disengaging with services, and their  condition worsening.
  • poor outcomes in the young person’s health, social participation and education.
What does ‘Transition’ mean to young people?

What does ‘Transition’ mean to young people?

- Going through life

- Independence 

- Growing up 

- Moving on 

Illustrations courtesy of Studio Beci 

https://hospiceuk-files-prod.s3.eu-west-2.amazonaws.com/s3fs-public/2023-01/transition-childhood-adult-services-hospiceuk.jpg

Hannah's experience of transition

Young people tell us that it can be challenging or impossible to find the support and services they need as they transition.

In this video, Hannah explains her unique experience of transition.

Support and resources for professionals

Every young person with a life-limiting or life-threatening condition should have access to appropriate care and support. This should reflect their individual needs and preferences.

We’ve developed some resources to help you support young people as they transition into adulthood, based on discussions with children and young people themselves, their families, and those who care for them.  

Transition: young person-centred care

Transition: young person-centred care

Resources to help you understand and support the needs and preferences of each young person you work with as they transition to adult services.
Find out more
On this page we’re sharing young people’s thoughts about the support they need as they transition to adult services

Support, activities and respite

Find out what young people think about the support they need as they transition to adult services.
Find out more
Strategic HR and Workforce Leads Network at Hospice UK

Transition: strategic approaches

Find out why you need to plan strategically for transition and how you can embed transition across your organisation.
Find out more
Living with a life-limiting illness as a teenager or young adult

Living with a life-limiting illness as a teenager or young adult

The resource on this page provides information and advice from people with lived experience about living with a life-limiting illness as a teenager or young adult.

Find out more
This evaluation report covers the learning from the Hospice UK transition programme, 'Being curious and confident', for young people with life-limiting conditions.

Being curious and confident: evaluation report

Read the learning from the three-year Hospice UK transition programme for young people with life-limiting conditions, in this summative evaluation report: 'Being curious and confident'.

Read now
The National Transition Community of Practice is a learning community for professionals who support young people with complex, life-limiting conditions as they transfer from children’s to adult services.

National Transition Community of Practice

Our Transition Community of Practice is a supportive learning community for professionals who support young people with complex, life-limiting conditions as they move to adult serv...

Find out more

References

  1. National Institute for Health and Care Excellence (NICE). Transition from children’s to adults’ services for young people using health or social care services: NICE guideline [NG43]. 2026 Feb 24 [cited 2023 Mar 09].
  2. Fraser, L, Gibson-Smith, D, Jarvis, S, Norman, P, Parslow, R. ‘Make Every Child Count’: Estimating current and future prevalence of children and young people with life-limiting conditions in the United Kingdom. Final Report. Together for Short Lives. 2020.