Big conversations

We are facilitating a roundtable for users of SystmOne, which will be led by Robert Fletcher, Business Intelligence Analyst, Martlets Hospice. The roundtable will explore how reporting from SystmOne can be made as efficient, consistent and useful as possible across the sector and for the Hospice UK activity and demographic survey in particular. 

All members of our Hospice Data Analysts Network will be invited to join this session.

Join the Data Analysts Network to recieve an invitation.

This roundtable for users of EMIS will be led by Mike Drew, Clinical Data System Manager, East Cheshire Hospice. The roundtable will explore how reporting from EMIS can be made as efficient, consistent and useful as possible across the sector and for the Hospice UK activity and demographic survey in particular. 

All members of our Hospice Data Analysts Network will be invited to join this session.

Join the Data Analysts Network to recieve an invitation.

This is the first in a series of workshops being run with colleagues from Marie Curie and Microsoft, to share skills on data reporting and the use of Power BI.

This workshop will be relevant for everyone who wants to learn more about data usage, visualisation and the Power BI tool in particular.

Sign up here

In this workshop on 3rd July 2024, we were joined by Dr. Sabrina Bajwah from the Cicely Saunders Institute at King’s College London, Faculty of Nursing, Midwifery & Palliative Care. Dr Bajwah facilitated a discussion about how hospices across the UK can deliver equitable palliative and end of life care to all ethnicities.

Educational film

• The discussion was informed by the educational film Shifting the focus from equality to equity, which was developed by Dr Bajwah and her team.

Helpful resources

• Bignall T and Phillips J. Improving the recording of ethnicity in health datasets: Exploring the views of community respondents and the healthcare workforce [Internet]. Race Equality Foundation; 2022 [cited 2024 Jul 11].
• Bajwah S, Koffman J, Hussain J, Bradshaw A, Hocaoglu MB, Fraser LK et al. Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study. BMJ Supportive & Palliative Care [Internet]. 2021 [cited 2024 Jul 11];14:e1478–e1487.

In this webinar on 27th June 2024, we asked how complexity can be measured in the context of palliative care. We explored how increasing complexity links to the resources needed to deliver care, and how this might link to costs and reimbursement.

Speakers included Gary Stinson, Payment Development Manager, NHS England; Matthew Grant, Palliative Medicine Physician/Assistant Professor at University Medical Centre Utrecht and University of Melbourne; Fliss Murtagh, Director of the Wolfson Palliative Care Research Centre.

Download the slides from the session

• Gary Stinson and Matthew Grant's presentations
• Fliss Murtagh's presentation

Helpful resources

• ElMokhallalati Y, Bradley SH, Chapman E, Ziegler L, Murtagh FEM, Johnson M J, et al. Identification of patients with potential palliative care needs: A systematic review of screening tools in primary care. Palliative Medicine [Internet]. 2020 [cited 2024 Jul 01];34(8):989-1005.
• Grant M, de Graaf E, Teunissen S. A systematic review of classifications systems to determine complexity of patient care needs in palliative care. Palliative Medicine [Internet]. 2021 [cited 2024 Jul 01];35(4):636-650.
• Pask S, Pinto C, Bristowe K, et al. A framework for complexity in palliative care: A qualitative study with patients, family carers and professionals. Palliative Medicine [Internet]. 2018 [cited 2024 Jul 01];32(6):1078-1090.
• Marie Curie. Understanding the cost of end of life care in different settings. [Internet] Marie Curie; 2012 [cited 2024 Jul 01].
• Murtagh FEM, Guo P, Firth A, Yip KM, Ramsenthaler C, Douiri A, et al. A casemix classification for those receiving specialist palliative care during their last year of life across England: the C-CHANGE research programme. Programme Grants for Applied Research [Internet] 2023 [cited 2024 Jul 01];11(7).

On 11th June 2024 we explored the creation of a national career pathway for nurses and allied health professionals in palliative and end of life care (PEOLC). We were joined by Professor Vanessa Taylor, Huddersfield University and Lesley Goodburn, NHS England. They shared their expertise and insights on:

• the development of a core capability framework and associated qualifications, designed to enhance specialised expertise for PEOLC nurses
• the progress made so far in these initiatives and the potential implications for the clinical workforce
• how resources developed to share lived experience might support education and development.

Watch a recording and download the slides

On 23rd May 2024 we shared the key findings from our Service Activity and Workforce surveys.

This included:

• what the data from the surveys is telling us about the national picture of hospice care
• ways we can improve the data
• how we might use it to showcase the value of hospice care.

Watch a recording and download the slides

Read our summary of data about the hospice sector in the UK

We were joined on 14th May 2024 by Karen Hayllar, the Senior Lead in NHS England’s ‘Making Data Count’ team.

Karen explained the value of statistical process control (SPC) charts to analyse patient safety incident data as part of a hospice’s continuous improvement journey.

We learnt:

• the differences between quality assurance and performance management
• how recognising variation in data over time can be used to support conversations about safety and quality.

Watch a recording of the webinar