Improving care for people with progressive neurological conditions

This programme aims to ensure that people in the UK living with progressive neurological conditions can receive palliative and end of life care that is high quality, equitable, and underpinned by a rehabilitative approach.

By the end of the programme, our goal is for hospices to feel more confident in supporting people with neurological conditions and their families. In turn, we want people with progressive neurological conditions and their carers to feel informed and supported around end-of-life issues.

We will achieve these goals in a number of ways:

• A grant programme providing 11 hospices with a total of £400,000 to fund innovative projects to improve care for people with progressive neurological conditions.
• A Community of Practice, enabling grantees to share their learnings and support each other through their projects. 
• The development of practical resources, informed by the views of people with lived experience.
• Webinars, roundtables and in-person events to share learning from the programme as it progresses. 
• Evaluation of grant projects and the wider programme, as well as research to inform future projects and resources.

This programme has awarded 11 hospices with grants to fund projects that facilitate a sustainable change in care for people with progressive neurological conditions. 

These grants, totalling £400,000, have been kindly supported by the Masonic Charitable Foundation.

Hospices taking part in the programme are running their projects over a period of 18 months. Throughout the projects, Hospice UK is providing wrap-around support and assisting with project evaluation. This support includes regular Project Lead Days, where participating hospices can meet, develop ideas, solve problems and learn from each other.

Below is a list of the 11 hospices that have received a grant and the titles of their projects.