Find information on how Hospice UK supports hospices to be research and outcomes active. A focus on research and outcomes enables good quality care to be provided, described, evaluated and shared.
Why be research active?
In 2013, the Commission into the Future of Hospice Care published 'Research in palliative care: can hospices afford not to be involved?' It identified how important it was for hospices to be research active.
Being research active means that hospices use the right evidence, in the right way, at the right time to plan, deliver and evaluate care. It looks at how the generation and development of new knowledge, evidence and research questions can make a difference to people’s lives.
Read the Commission into the Future of Hospice Care's report, 'Research in palliative care: can hospices afford not to be involved?'
What is a research active hospice?
The Commission report recommended the adoption of the Research Framework for Hospices. This framework provides guidance for three levels of research-focused participation within hospice care settings:
- Level 1: Research awareness in all professional staff
- Level 2: Engagement in research generated by others
- Level 3: Engagement in research activities and leadership in developing and undertaking research
Many research active hospices also connect locally, regionally, nationally or internationally with research and academic organisations. These might include research networks, universities, academic centres and other health and social care providers.
Hospice UK active research community
Hospice UK established a Research Community in 2017. This group consists of over 300 members, from all sectors, and covers multiple aspects of research.
The purpose of this Community is to be able to discuss, share and debate all the issues relating to research.
Joining this community gives members access to our bi-monthly newsletters as well as invitations to events. The most recent of these was on 14th June 2022 where the focus was on the ‘Prevention, recognition and management of delirium: what works and how to put it into practice’.
Why be outcomes active?
An outcome measure captures ‘change in health status’ as a consequence of health care or interventions. Outcome measures enable us to deliver and sustain good quality care. Being outcomes active enables a hospice to capture and evidence the care they provide.
Register for our communities and networks
You can register to join our research community of practice and receive our newsletters.
The monthly Zoom-based Outcome Measures in Practice ECHO meetings provide a platform for you to network, share learning and support each other with outcome measures.
Over time, membership, resources and relationships have grown and this network has developed into a Community of Practice. You may be using outcome measures in practice and want to develop their use further, or just be considering how to start out.
Research and Outcomes Community of Practice - become a member
Outcome Measures in Practice ECHO Network
What participants have said
"I'm new to the sessions but the ones I've attended so far have all been very informative, friendly and extremely well run"
"Love the collaborative format"
"The overall programme has really help us keep perspective on our journey and aided our learning and deeper understanding of the OACC elements which has helped us with our internal training"
ECHO network participants
Useful links and organisations
Explore further information and resources relating to research and outcomes.
BMJ Supportive and Palliative Care is an official journal of Hospice UK. Qualifying member hospices benefit from free access to the print version of the journal, plus a discount on the cost of an institutional online and print and/or online only annual subscription to the journal.
As the publisher has separate arrangements with NHS institutions, qualifying members for this offer are local independent charitable hospices and hospices run by national charities.
The End of Life Care for All (e-ELCA) programme contains over 160 highly interactive sessions to enhance the training and education of the health and social care workforce.
The Palliative Care Research Society undertakes the promotion of research into all aspects of palliative care and to facilitate its dissemination.
The Scottish Partnership for Palliative Care (SPPC) brings together health and social care professionals from hospitals, social care services, primary care, hospices and other charities, to find ways of improving people’s experiences of declining health, death, dying and bereavement.
The All-Ireland Institute of Hospice and Palliative Care is a collaboration of hospices, health and social care organisations and universities on the island of Ireland.
The Association for Palliative Medicine of Great Britain and Ireland (APM) is the world’s largest representative body for doctors practicing or interested in Palliative Medicine.
An informal group of staff working in library, information and education roles who provide services to support education, research and best practice in hospice and palliative care organisations. Contact Sue Langley at East Anglia’s Children Hospices (EACH).
The content and views expressed by the following organisations do not represent the views of Hospice UK.