Hospice service activity and demographic data collation

Every year, we collate data about hospice services. We analyse this data and share it to help promote the work of our sector.

This data forms a key part of our work fighting for hospice care for all who need it, for now and forever.

It's really important that all our member hospices participate in the survey, so we can all have the meaningful and robust data we need to evidence the vital work going on in hospices at a local and national level.

Which hospices need to complete the survey?

The Activity and demographic data survey is for all independent charitable hospices from all four nations of the UK. This includes adults and children's hospices (and hospices serving both).

Marie Curie and Sue Ryder will submit data for their hospices via their Head Office.

NHS hospices (and NHS charities supporting NHS hospices) do not need to fill in the survey.

What does your hospice need to do?

Each year, we will ask you to submit your:

• service activity data
• patient demographics.

How will you tell us about the survey?

We will invite hospices to complete the survey via the Data Analysts Network and Hospice Leaders Briefing.

All data for the Activity and Demographic survey should be submitted via our Member Data Portal. We will create an account for everyone that needs access to submit data.

If you don’t have an account to submit data please check with your CEO that the Key Contacts survey has been completed and submitted. Once we have received this we will create you an account and you will receive an email to create your password and access your account.

You can download the Activity and Demographic survey question set as a .pdf file.

The data submitted to this survey will be brought together and held securely and confidentially within Hospice UK's system. Analysis will be by a small Hospice UK team who will aggregate and report the data at UK and country level only.

No individual hospice data will be publicly identified.

We will publish individual hospice reports for the activity and demographic data on our Member Data Portal. If you already have an account that you used to submit data to the survey, you will be given access to the report via the same account.

Hospices that submitted their Activity data before 6 July will get access to their report via the portal by 7 August. Please go to the report section in the Member Data Portal to view your report.

Hospices that submitted data after 6 July will get access to their report via the portal in September.

We will also create accounts on the portal for Chief Executives to view all the reports about your hospice – this will be done in August and September.