This guide aims to share some of the thinking, good practice and resources that have been developed throughout learning disability and end of life care services in a form that is accessible to all practitioners but especially those working in hospice settings.

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About this publication

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This guide begins by defining learning disability with an introduction to the accompanying health issues of people with learning disability, and goes on to set the context within which end of life care issues arise.

In discussing palliative care for people with a learning disability, the publication covers issues of cognition and communication, consent, advance care planning, pain and symptom control, psychosocial care (including bereavement),issues for carers, transition and user-involvement, as well as issues for specific groups of people with learning disabilities such as children or those with autism.

Authors

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  • Linda McEnhill

Published by Help the Hospices in 2013.