Research and outcomes

Hospice UK supports hospices to be research and outcomes active. A focus on research and outcomes enables good quality care to be provided, described, evaluated and shared.

Research and outcomes are crucial for hospices

Why be research active?

In 2013, the Commission into the Future of Hospice Care published "Research in palliative care: can hospices afford not to be involved?" It identified how important it was for hospices to be research active.

Being research active means that hospices use the right evidence, in the right way, at the right time to plan, deliver and evaluate care. It is also concerned with the generation and development of new knowledge, evidence and research questions to make a difference to people’s lives.

What is a research active hospice?

Following on from the Commission report and consultation in 2016-17, research active hospices includes:

  • Being research ready: ready to use and/or generate research evidence
  • Research aware: visible use of best possible evidence (all hospices)
  • Research engaged: supporting the development of evidence (many hospices)
  • Research generating: contributing to the development of or generating evidence (some hospices)
  • Research leading: leading the generation of evidence and research questions (a few hospices)
  • Research active hospices also connect locally, regional, nationally or internationally with research and academic organisations such as Research Networks, Universities, academic centres and other health and social care providers.

Why be outcomes active?

An outcome measure captures ‘change in health status’ as a consequence of health care or interventions. Outcome measures enable us to deliver and sustain good quality care.

For more information about outcome measures please visit The Outcome Assessment and Complexity Collaborative (OACC).

Hospice UK support

Why be outcomes active?
How we can support you >

Useful links and organisations

Useful links
Get more information, advice and stories >

What does hospice care mean to you?