Briefings and consultations

Everyone has the right to high quality care and support at the end of life, no matter who they are, where they are or why they are ill. But many people are still not able to access the help and support they need in their final days.

End of life care for imprisoned people should be a UK-wide policy priority. The current provision of and unmet need for end of life care in prisons should be established across the four nations.

This guidance for Scottish hospices outlines the legal and regulatory requirements that hospices should take into account when campaigning during the regulated period for the Scottish Parliament election – as well as handy dos and don’ts for what this means in practice.

This is a template letter that Scottish hospices can adapt and send to election candidates in their local area ahead the Scottish Parliament election on 6 May 2021 – to raise awareness of their hospice and the importance of palliative care.

Hospice UK presents an overview of the care charitable hospices provided to people in Scotland in 2018-19, and the support they gave to other health and social care providers. The report represents the last full year of hospice activity data before the COVID-19 pandemic.

Hospice care activity in 2019 in the context of palliative care need in Wales.

Adroddiad ar weithgarwch hosbisau ym 2019 yng nghyd-destun angen gofal lliniarol yng Nghymru.

Hospice UK has produced a summary of two important and connected documents for the NHS in England.

To help your organisation register and get started with the Toolkit, Hospice UK and the Institute of Public Care (IPC), part of Oxford Brookes University, held this webinar on March 4th 2021 as part of a national support programme funded by NHSX.

Hospice UK and the Institute of Public Care (IPC) teamed up to give information on changes made to the DPST for 2020/21. NHS Digital’s Data Security and Protection Toolkit is a free, online annual self-assessment for health and care organisations that helps to show compliance with CQC Key Lines of Enquiry, data protection law and the 10 Data Security Standards.

A response to the planned direction of travel for the regulator in England. CQC have identified four areas of focus - People and communities; Smarter regulation; Safety through learning; and Accelerating improvement.

In addition to consulting on their longer term strategy, the regulator in England invited responses to plans to make inspections more 'flexible and responsive'. This includes proposals to reduce the amount of on-site inspection, to update ratings more regularly and to make use of a wider range of tools and techniques to assess quality of care.

This is Hospice UK's submission to the National Institute for Health and Care Excellence (NICE) consultation on the update to the Quality Standard for end of life care. More information about the Quality Standard and the process of consultation can be found on the NICE website.

We welcome the opportunity to share our views on the Disabled Children and Young People (Transitions) (Scotland) Bill. Our response focuses specifically on the impact of the Bill on young people with life-shortening conditions who are transitioning to adulthood.

A response from Hospice UK to the NHS England and NHS Improvement consultation on the next steps for Integrated Care Systems (ICSs) and their future statutory footing.

Read our response to the Scottish Parliament.

Our response to the Social Security Administration Bill, which calls for support for nurses to be allowed to diagnose terminal illness for fast-track access to benefits in Scotland.

A joint response from Hospice UK, the Association of Palliative Care Social Workers, Carers Scotland, Children’s Hospices Across Scotland, Marie Curie, MND Scotland, Scottish Care and Sue Ryder.