As many as 1 in 4 people, who could benefit from palliative and end of life care, do not receive appropriate support. This is unacceptable. We – palliative and end of life care services, commissioners, governments and other partners – must do more and do so quickly.
Find out more about this inequity and what Hospice UK is doing to promote access to high-quality palliative and end of life care for all below.
Who experiences inequity in end of life care?
Our report Equality in hospice and end of life care: challenges and change identifies groups of people who are being excluded from accessing and receiving high quality palliative and end of life care.
Many of these people will already have encountered unfairness and discrimination throughout their lives.
These groups of people are:
- An ageing population, living with frailty and dementia
- LGBTQ+ people
- People experiencing homelessness
- People in prison
- People living with learning disabilities
- People living with non-malignant conditions
- People living in poverty, deprivation, and with lower socioeconomic status
- People living in remote and rural areas
- Racialised communities.
“Hospices and other end of life care providers equally have a responsibility to ensure that everyone who needs it can access the care they want and need in a way that reflects who they are.
"The onus must be on the sector to listen, reflect, innovate and advance so that people from all communities are included, along with their families and carers.”
Tracey Bleakley, Equality in Hospice and End of Life Care: Challenges and Change
What is Hospice UK doing to promote equity of care?
Tackling inequity and widening access to hospice care is at the heart of our organisational strategy.
We are working with the hospice sector and other partners to improve our understanding of who is and who is not receiving palliative and end of life care, and to support hospices to better understand and meet the needs of their local communities.
We are carrying out research into the barriers that people face in accessing care, lobbying for system change and sharing best practice to help services respond to unmet need.
Reports, guidance and resources
We've produced reports, guidance and resources to help policymakers and services ensure people from minoritised groups receive the care and support they need.
Find out how services are promoting equity of care in our Examples of Innovation directory.