As many as 1 in 4 people, who could benefit from palliative and end of life care, do not receive appropriate support. This despite a consistent approach to reducing inequalities in national policy spanning decades and changes in the academic grounding and application of services.
Inequalities of access and standards of care are particularly felt by those who have already encountered unfairness and discrimination throughout their lives.
This is not acceptable. We - palliative and end of life care services, commissioners and partners - must do more and do so quickly.
A change in emphasis is underway and progress to reach further into communities to meet unmet and under-met need can be found throughout the UK. However, it is clear, from looking at population level data, research and from listening to people’s stories, that there is still an incredibly long way to go.
Hospice UK along with Marie Curie, Together for Short Lives and others, have produced a resource outlining work in progress to improve personalised end of life care for Gypsies and Travellers, LGBT people and people experiencing homelessness.
Offering top tips and describing simple effective approaches for success, this practical guide is intended for commissioners, service providers and those involved in caring for and supporting children, young people and adults living with advanced illness towards the end of their lives.
The project was funded as part of the national Voluntary Community and Social Enterprise (VCSE) Health and Wellbeing Alliance.