Improving employment protections for working carers of dying people

We are campaigning for the government and employers to do more to minimise the negative employment and financial impacts for carers of people at the end of life.

Carers play a crucial role in caring for someone approaching the end of life so that they can be supported to live well and die at home if that is their wish.

For the carers themselves, this role can be very demanding and increasing numbers of people who care for a spouse of other family member with a terminal illness or life-shortening condition leave work as their caring responsibilities grow.

This can lead to poor financial and employment outcomes in both the short and longer term, and many carers struggle to return to employment after bereavement, compounding their situation. This cost extends beyond carers themselves. It is also the loss of skilled staff to employers and the labour market more broadly.

Strengthening flexible working arrangements and allowing defined periods of leave of absence with a guarantee to return to a job could mitigate many of these negative consequences for carers.

We are currently working with the government to ensure that its manifesto commitment of giving workers a new statutory entitlement to carer’s leave is implemented in the current parliament.

Further information

Contact the team for further information on our carer's campaign.

What does hospice care mean to you?

Help us support hospice care by donating
Donate by phone
Donate online
Donate by post

© Copyright Hospice UK 2021 - all rights reserved

Company limited by guarantee. Registered in England and Wales No. 2751549. Charity registered in England and Wales No. 1014851, and in Scotland No. SC041112.

VAT No 731 304476.

National Voices