Publications

We publish a wealth of publications to support hospice and palliative care providers, covering a wide range of topics.

Publications are listed in order of the date they were published (with the most recent first), but they are also listed by category, or can be found using the keyword search facility.

select
  • May 01, 2014
    Difficult Conversations for Heart Failure
    This guidance, funded and supported by the British Heart Foundation, aims to help anyone caring for someone with Heart Failure to open up conversations about end of life wishes and preferences, in order to enhance quality of life. It is based on conversations with more than sixty people affected by Heart Failure: people with Heart Failure, carers and former carers. Thanks to the British Heart Foundation this publication is free of charge.
  • Jan 01, 2014
    Life After Death: Six steps to improve support in bereavement
    Bereaved people across Britain are being failed by a lack of support including in the workplace, according to a new report published by the National Council for Palliative Care, in partnership with the Dying Matters Coalition which it leads and the National Bereavement Alliance. This report reveals survey data that shows a third of people (32%) who were bereaved in the last five years whilst in a job do not feel that their employer treated them with compassion.
  • Oct 13, 2013
    Working towards a hospice workforce that is fit for the future
    This working paper lists the roles and skills required in the hospice workforce in the future, and provides some recommendations to help the sector provide these skills. Author: Skills for Health.
  • Jan 01, 2012
    How would I know? What can I do? How to help someone with dementia who is in pain or distress
    If you are giving care or support to somebody with dementia, particularly as it advances and their ability to communicate reduces, you may find that they sometimes behave out of character. This can be displayed in different ways, including being agitated, frustrated, confused, wandering, anxious, pacing, calling out, aggressive or fearful. And if you can find out what the cause is, you might be able to do something about it.
  • Board Development Programme - Progress and findings
    This report summarises progress and findings from the start of the Hospice UK Board Development Programme in early September 2011 to the end of December 2012. (Published 2013)
  • Hospice board recruitment and selection
    Covers all aspects of recruiting and inducting new trustees.
  • Developing a balanced scorecard for your hospice
    A balanced scorecard is a select set of strategic, linked objectives and measures that help to understand the key strategic drivers of performance, and then monitor progress against these.
  • Developing a dashboard for your hospice
    A dashboard is a collection of the key performance measures of current and primary interest to the board, used to underpin their strategic conversations.
  • Effective board meetings in your hospice
    Focuses on what makes an effective board meeting, covering key benefits of effective meetings, good governance in meetings, as well as some top tips and resources.
  • Board reports that add value to your hospice
    Guidance on effective board reporting, providing the board with information that is concise, relevant, reliable, timely, material and fit for purpose.

What does hospice care mean to you?