Publications

We publish a wealth of publications to support hospice and palliative care providers, covering a wide range of topics.

Publications are listed in order of the date they were published (with the most recent first), but they are also listed by category, or can be found using the keyword search facility.

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  • Nov 25, 2014
    Impact Report 2014
  • May 01, 2014
    Difficult Conversations for Heart Failure
    This guidance, funded and supported by the British Heart Foundation, aims to help anyone caring for someone with Heart Failure to open up conversations about end of life wishes and preferences, in order to enhance quality of life. It is based on conversations with more than sixty people affected by Heart Failure: people with Heart Failure, carers and former carers. Thanks to the British Heart Foundation this publication is free of charge.
  • Jan 01, 2014
    Life After Death: Six steps to improve support in bereavement
    Bereaved people across Britain are being failed by a lack of support including in the workplace, according to a new report published by the National Council for Palliative Care, in partnership with the Dying Matters Coalition which it leads and the National Bereavement Alliance. This report reveals survey data that shows a third of people (32%) who were bereaved in the last five years whilst in a job do not feel that their employer treated them with compassion.
  • Oct 13, 2013
    Working towards a hospice workforce that is fit for the future
    This working paper lists the roles and skills required in the hospice workforce in the future, and provides some recommendations to help the sector provide these skills. Author: Skills for Health.
  • Jan 01, 2012
    How would I know? What can I do? How to help someone with dementia who is in pain or distress
    If you are giving care or support to somebody with dementia, particularly as it advances and their ability to communicate reduces, you may find that they sometimes behave out of character. This can be displayed in different ways, including being agitated, frustrated, confused, wandering, anxious, pacing, calling out, aggressive or fearful. And if you can find out what the cause is, you might be able to do something about it.
  • The role of hospices in supporting young people in the transition from children to adult services
    This publication outlines the challenges facing both child and adult palliative care services in supporting young people as they move from children’s to adults services and provides guidance to support these transitions. Author: Lidstone Victoria. (Published October 2013)
  • Future needs and preferences for hospice care: challenges and opportunities for hospices
    This working document provides a summary of the key points raised during a Commission into the Future of Hospice Care event to discuss the implications of the Commission report 'Current and future needs for hospice care: an evidence based report'. Hospices are strongly recommended to read this working document alongside that report. (Published April 2013)
  • Learning more: patient and family feedback on care
    The Commission into the Future of Hospice Care asked patients, families and carers to complete a postcard which asked two questions to help understand what is special and different about the care they received in their local hospice. This two-part comic gives feedback on the findings. (Published 2013)
  • Carers' services guide
    This guide is a useful resource for anyone planning to develop support services for carers of people diagnosed with life-limiting and terminal illnesses. Includes helpful tips and case studies. Author: Rose Heatley. (Published November 2008)
  • Identifying carers' needs in the palliative setting
    Developed by an expert working group, the guide provides a framework for developing a carers' assessment process in the palliative setting. (Published March 2009)

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